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OCR-derived details: Public contact fields shown on this page were extracted from the Chinese source image when readable. The fuller source-language organization summary is maintained in the Chinese locale to avoid over-translating uncertain OCR text.

Source and risk note: Source: Gene Jianghu WeChat article “Revised | China Rare Disease Patient Organization Directory (2023)” (https://mp.weixin.qq.com/s/C-KAD5l2GUlNpwruGesRHQ). This entry was organized from a 2023 public post and OCR output for navigation only. Organization status, contact details, service scope, and aid eligibility may change; Spanios does not endorse the organization or guarantee contactability or aid. Verify through the organization’s latest official channels.